Charleigh's middle name is Cadeau. It is French for "gift." We could never have realized just how appropriate her middle name is! Charleigh was induced at 34 weeks due to her mother having severe Preclampsia. She weighe...d only 2 lbs and 7 oz! Charleigh's grandfather was in the end stages of terminal cancer. Doctors told him he might have to end of the year at best. Charleigh's Pap-Pap promised Char's mom that he would hang on for his grandbaby. The night Charleigh was born, Pap-Pap was rushed to the hospital and then moved into a hospice. He was able to see pictures of his little grandbaby before passing away 4 days later.
When Char was just a day old, her little belly swelled. She had kinking in her intestines and spent the next 3 months in the NICU. She has been in and out of the hospital 19 times, has had 8 surgeries, 7 broviac replacements, been on ECMO and a ventilator and has had a 2 month stay at the Children's Institute for feeding therapy. She receives 14 hours of TPN, she is tubed fed 8 hours a night and is a possible candidate for an intestinal transplant or the STEP procedure. She has short-gut syndrome, failure to thrive, a blood clotting disorder, Gastroesophageal Reflux and tactile and sensory aversions. When Char was on ECMO, we told her survival rate was only 60% at best. However, they underestimated her amazing spunk, guardian angel Pap-Pap, her abundant happiness and the thousands of people she had praying for her. Everyone says that she is something very special and she certainly is!
~~Submitted by her Mother Ashley
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