Zeke is kept alive by technology they are alive only because of the ventilator they use to breath with. Zeke has diastrophic dysplasia a rare type of dwarfism. He recently received a life saving surgery, He had a c spine kyphosis of 130 degrees and it was compressing his spinal cord to the point we could of possibly have lost him. No one was willing to or knew how to do the surgery and i was told it would not help him and he possibly would not survive it. His surgery , after much advocacy and fighting with bureaucracy was done at AI Dupont hospital by a wonderful orthopedic doctor and was a success. He is home now in his cervical halo which you can see on zekes facebook page is Saving Zeke and now here is our Youtube Video: http://www.youtube.com/watch?v=Mytajno5AzU
If you would like to share your Special Needs Story,please email us at:
info@JTWF.org
Send your story and a Youtube Video or Picture of your Special Kid and we will gladly post it!
Thank you.
Welcome to the Jonah & The Whale Foundation Family Blog
We invite you to join us for topic discussions, family networking, and resource opportunities. Most importantly, we invite you to brag on your special needs or chronically ill child. We just kindly ask that you join us in making this Family Blog a Medical-Free Zone. Please do not discuss in detail medical terminology, any unconfirmed diagnosis, medical interventions, or hospital stays. The goal of this blog community is to appreciate and understand your challenges and share with others the ups and the downs of being a family with a special needs and/or chronically ill child. Please feel free to post pictures of your special kid and your special family as well. Thank you.
Jonah and The Whale Foundation, is a 501{c}3 Non-Profit Organization that Helps families of disabled & chronically ill children around the world. The Foundation provides parents with advocating workshops, resource materials, durable medical equipment, family networking, a mobile library, and other support services if needed. Please visit our website at www.JTWF.org
No comments:
Post a Comment