Wednesday, April 13, 2011

JTWF Special Kid: Daniel

Daniel was a sweet normal infant, and at 8 weeks old in January of 1998 he had a severe respiratory virus known as RSV..which resulted in a critical case of pneumonia in both lungs. He was very very sick and spent two weeks in the hospital.

We didn’t know a time that Daniel’s brain was malformed…and as he reached 5 and 6 months old… we attributed his lack of motor skills to delay due to the traumatic pneumonia and lack of oxygen. Sadly, that wasn’t the case.

At 11 months old he had his first MRI, and we found out that despite the traumatic RSV illness…he had actually been born with the condition known as PMG, or Polymicrogyria. The diagnosis was confirmed by a specialist, Dr. the University of Chicago Childrens Hospital..

Daniel has” diffuse, grade 2b, PMG, with near diffuse frontal-perisylvian parietal involvement. The PMG involves 80% of Daniel’s brain,and is most severe in the temporal regions of the brain. The frontal lobes are significantly involved, while occipital lobe appears almost normal.”

From the age of 8 weeks until today (12 years later) our life has taken a much different path than we ever imagined it would.

Daniel’s PMG and Microcephaly.. results in severe global motor skill dysfunction, seizures, feeding problems, respiratory problems, and orthopedic problems with his hips.

~~As Taken from his website:

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